GET INVOLVED

FACE BOOK PAGE

A Face Book page has been set up to enable friends to keep up to date with the latest news about Katie and the up to date fundraising details.

Katie Smith Fundraising group: https://www.facebook.com/Katiesmithfund

Like the page to be kept updated :)

EASY FUND RAISING

Raise money for Katie Smith Fund by shopping on-line at www.easyfundraising.org.uk

A percentage of any purchase made goes direct into the fund and includes retailers such as Amazon, Argos, Boots, John Lewis, Sainsburys, M&S and 2,000 others. Simply type in Katie Smith Fundraising Group…and start shopping. Its at NO COST to you but helps the group to raise money.

AWARENESSEDUCATORS

AWARENESS

More info about NF & Scoliosis:

There are over 25,000 people in the UK affected by Neurofibromatosis and as yet, there is no cure.

Neurofibromatosis (NF) is a genetic disorder that causes tumours to grow anywhere on or in the body.

Neurofibromatosis 1 (NF1): also known as von Recklinghausen NF or Peripheral NF. Occurring in 1:3,000 births, web characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin. Enlargement and deformation of bones and curvature of the spine (scoliosis) may also occur. Occasionally, tumours may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF also have learning disabilities.

Katie has NF1 and although most cases of NF1 are mild to moderate, NF1 can lead to disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumours; loss of limbs; malignancies; and learning disabilities. Unfortunately Katie has complex NF1 and as a result has a variety of health problems.

Katie also has Scoliosis, curvature of her spine, which has also impacted on her health. Katie had two magnetic growing (MAGEC) rods fitted to her spine and a section of tumour removed in Jan 2014.

Katie has a twin brother (Joseph) who has neither condition.